Something
remarkable happened last Wednesday afternoon.
As I think I've
written before, our Harvard Medical School Class of 1967 has
experienced a rebirth of our comradeship in the last couple of years.
After our 55th reunion – which I didn't attend because of the
death of my wife just a couple of months before, and I wasn't ready –
several of my classmates decided to use that great new technology,
Zoom, to have regular meetings of our class. We have always been a
cohesive class, helped by the set-up of our beginning at HMS –
living and eating together at Vanderbilt Hall for the first two
years, having so many classes and experiences together, being
relatively small at maybe 100 or so until we got an influx of
Dartmouth students for year three. So as the reunion rekindled the
connections, Zooming seemed like a natural thing.
Karl Singer, Bob
Holmes, and Phil Landrigan put it together as a monthly event,
centered around presentations from our classmates on their own
scientific interests (sodium depletion in long distance runners) or
their medical experiences (Vitamin A supplementation to poor areas of
the globe that has saved the sight and lives of millions) or more
recently personal interests and events (part-ownership of a minor
league baseball team, a session on our members' experiences serving
in the military during the Vietnam War, and upcoming a session on
what women of our class have experienced as women in medicine.)
Other presentations were from experts outside our class, usually from
HMS (gender affirming care.) All the sessions start with chit-chat
among us. Attendance has been generally from 15 to 30.
In late 2022 I
suggested a presentation on Alzheimer's Disease. My wife had just
died of it after a very long course, and I had read a book by Harvard
professor Arthur Kleinman about his own experience when his wife
suffered and then died from the disease – The Soul of Caring. (See
my blog article on Arthur and the book here.)
Arthur made his presentation to the class and I added a few words
myself, and then something remarkable happened – everyone on the
Zoom call was energized to reflect themselves on how they had
experienced frustration with the lack of humanistic care in our
system, both as doctors and patients. It was a very moving session.
Sensing this common interest, I contacted Arthur wondering what we
could do as a class to promote humanistic care at HMS. He referred
me to a class-organizing activist in community medicine, second year
student Eana Meng, and one thing led to another and we established a
Humanistic Medicine Initiative (HMI) for our Class of 1967. We have
a working group of 14 – 2 students, 4 faculty, and 8 HMS 1967 class
members. We have had a couple of notable triumphs. We held a HMI
dinner meeting at the Harvard Club of Boston, with 6 HMS 1967 alumni,
4 faculty, and 10 students, which was illuminating, energizing, and a
lot of fun. We came up with a new
definition of Humanistic Medicine. Under the leadership of
faculty member Kathe Miller, we recorded a video, entitled “If I
Knew Then What I Know Now,” for incoming first year students, where
Kathe got 13 of us to sit for her to record our advice to the
incoming students. The advice was wide-ranging, but most of it
centered on humanistic topics, how to care both for patients and for
the students themselves. In addition, HMI working group member
George Lewinnek published a book
he had been wanting to write on advice for young doctors, with a
distinct humanistic medicine bent.
We have also had
a remarkable incidence of synchronicity. In our search for how we
could help the students best, Eana and her classmates centered on
their desire for mentors. They wanted to connect with our class to
see what wisdom they could glean. I told Eana I wasn't sure about
“wisdom,” but I was sure we had lots of experience to share.
Coincidentally, Andrea Schwartz, the head of the Aging and End of
Life Care Theme at HMS, and her team including student Micayla Flores
who also had come to our HMI dinner at the Harvard Club, were
thinking of alumni mentorship at the same time, though with a
different angle. They thought that if they could connect students
with alumni to discuss how aging was going for them, and how they had
experienced their careers and their lives, that might grab the
students' attention to their own subject of gerontology. It was
really quite an imaginative leap. And at the same time, UC San
Francisco gerontologist Louise Aronson was President of the HMS
Alumni Association, and she was looking for a way to get alumni
involved with the school and with mentoring. It's like there were
four different avenues (students, HMS 1967, the Aging Theme, and
Alumni Association) all heading to a common interchange and crashing
into each other, in a good way.
So last semester,
6 HMS 1967 alumni mentored present HMS students, and it went great.
This year, all the HMS Class of 2028 are required to have an alumni
mentor for four sessions. So far, it seems to be going great. There
is great enthusiasm among all the ranks of alumni, and especially so,
it seems, in our Class of 1967.
All during the
year, as we met for our HMS Class of 1967 Zoom sessions, we updated
our class on what the HMI was doing. It was on everyone's mind.
There were many questions and observations. Many people wanted to
make financial contributions for HMI at HMS. We have clearly become
a class centered on humanistic medicine, it seems.
Gerry's
Presentation
And then, last
Wednesday, the remarkable thing that I'm referring to in this post
happened. Our classmate Gerry Rogell, eminent ophthalmologist from
the DC area, wanted to present the case of his wife's Covid, and the
medical problems that ensued from it. He introduced his presentation
by saying that he had had difficulties with her care, and didn't have
anyone or any group to discuss it with, that others had had more
difficulty with family illnesses than he had and that he feared he
would appear self-indulgent and callous to talk to Diane's illness
with them. But he knew that if he presented it here, to his HMS 1967
classmates on Zoom, that we would understand, and that we would be
sympathetic. In other words, he trusted us to be caring. And he
knew that, as doctors, we would all understand in a way that only
fellow doctors can.
What happened was
that, despite all the precautions they had taken, toward the end of
the pandemic, Gerry and Diane had finally contracted Covid. He got
off light but she didn't, she got what seems to be an autoimmune
encephalitic reaction to Covid that exacerbated a pre-existing
neurologic condition very severely, and he had to care for her
through hospitalization, rehab facilities, home care, dealing with
doctors and nurses, and having to cope in ways that he hadn't before.
He thought her medical care had been good overall, but there had
been one untoward incident when Diane was ready for discharge but the
doctor had done early rounds and left before Gerry got there, and
Gerry wanted to talk to him about possibly tapering steroids instead
of just stopping them cold, and what complications to look for, and
the nurse put her foot down and wouldn't contact the doctor. Gerry
was in a tough spot, being both a caring husband and a knowledgeable
doctor, and wanting to be cooperative and respectful as a patient
should be, but also wanting to serve his wife's best interests as he
understood them as a doctor. In the end he cooperated and they left
without discussing the case with the neurologist, but then Diane had
a stroke. Would tapering steroids have prevented that? Unknowable,
but Gerry was understandably pissed and felt that he had let Diane
down by not insisting. He complained to the hospital about the
nurse's obstruction and got back a letter defending the nurse and the
hospital. Gerry felt dissed and is still pissed.
Diane is still
debilitated from the post-Covid events. She can't walk unaided, and
her understanding and decision-making are compromised. They hope to
move from their home to an institution for older people in New
Hampshire, but Gerry is unsure if they can prove Diane's status as
able to live independently, which is a requirement. Our society's
provisions for these cases is not terrific. People are left to cope
in ways that are uncomfortable. Just when their situation is most
impaired, they are called upon to make decisions and provisions and
it's very hard.
After Gerry
finished with his story, our class commented. Everyone was warm and
supportive. Everyone told Gerry he should not be beating himself up
about failing her, because he had not. He had done and was doing a
fabulous job. We all realized how we are in the same boat, how we
too are coping with a defective system of care, and there are always
some bad actors in the system. We are all trapped in our time of
aging, if the 60's and 70's were bearable, the 80's threaten not to
be. I told Gerry that what he had gone through, and was still going
through, was a trauma, and he needs to think of it in those terms.
We get married, and we don't know what will happen, but we know that
something will, and the key is, will we meet the moment? I felt I
did meet the moment with my wife, and that was comforting to me.
Larry Kadish and George Lewinnek and I all emphasized that he was
meeting the moment with Diane, exceptionally so. I said, You are a
really good person. We can't save them, but we can help. I welcomed
him to what I called the worst club in the world. Polly Walker said
she remembered when she and Gerry were bicycling together and he told
her he was going to marry Diane. Not that long ago, really, or maybe
really long ago, I don't know. Judy Chused offered, in addition to
observing that when things go wrong we always look back and say “what
if,” that her internist daughter is also the CIO of the hospital in
question where the nurse had obstructed Gerry from contacting Diane's
neurologist, and where the hospital had callously informed Gerry that
everything they had done was right, and the Judy would most certainly
be bringing the case up to her daughter. Larry Kadish, formerly
Medical Director of a major hospital for many years, someone who
understands hospital procedures well, offered that contacting the
Joint Commission directly would certainly get results.
Most eloquently,
psychiatrist Ed Bayard told of his coping with the long illness of
his wife, who finally died just this August. He noted that the long
illness brought them together in a way that was almost unimaginable.
It's hard to say these things have silver linings, but they do prove
and reaffirm love and caring, and that's not nothing. We record all
these Zoom sessions, but wouldn't you know it, the recording function
failed just before Ed's pièce de résistance. Maybe we'll be
able to get him to reiterate it, because his contribution was really
magnificent.
I think that a
meta-comment I made was also important. I noted that he had said at
the outset that he was turning to us because he knew he could trust
us to understand, to be kind, to be caring, and to give him support – not in those
words, but that is what he meant. We
are his class, and that means something. Gerry agreed. He talked
about his comfort with this community that we have, that we have created.
One of the
strengths of our community is that we are all both doctors and
spouses, which is a tricky situation. We try to be spouses first,
but we can't help using our medical reasoning, and it actually does
make a difference many times. But it's hard being both patient
spouse and doctor. Do you insist on seeing the doctor when you have
been discharged with insufficient discussion? As a patient, maybe
you give way. As a doctor, maybe you insist. It's a dilemma
frequently noted in essays in JAMA and NEJM by those who have been
placed in this situation. Gerry knew that we would understand the
dilemma better than any other group.
Would this
session have happened the way it did if we hadn't done all the work
we have done on humanistic medicine? I don't think so. It has
brought our whole class together. We have discussed it, recognized
it, tried to help the current undergraduates with it, tried to help
HMS with it. We have a common understanding. George Lewinnek
emailed me after the session that I should be proud that the HMI has
really worked. I think we should all be proud, because so many of us
have done this together, not least George.
Our class
gestated medically together. We lived, ate, and studied together.
Then we differentiated in different medical pathways, in different
areas of the country. But our togetherness formed bonds, and we have
reaffirmed those bonds through the wonder of technology. We see each
other how we are now, more mature, more experienced, with more
yesterdays than tomorrows, with much of our lives played out. We
have had our triumphs and our failures and our heartaches, and we
know that nobody bats a thousand. But still, possibly, if we work at
it, it seems we have each other. And we can treasure our yesterdays
and honor them with our todays. And all of us can still learn –
indeed, we can't help it. And with our mentoring, we can pass our
experience on to our successors, maybe even our wisdom. And wonder
of wonders, we can do it together.
I talked to Gerry
on the phone after the Zoom meeting, and I know Jeff Newhouse called
him as well. He feels so warm and affirmed from the whole
experience. I assured him that everyone on the call feels the same
way. Who benefits more, the giver or the receiver? Gerry did a
service to the whole class, really.
It's all pretty
remarkable, all of it.
Budd Shenkin