“Make the diagnosis!” – as my
medical journals would challenge the reader on page 39 or so.
Shouldn't be too hard, for most doctors. First noticed last Friday
on the flank of a 75 year old man, about three inches below the left
axilla, the patient discovered the lesion by inadvertently touching
it when toweling off after a shower, indicating that it was raised
enough to be palpable. The pigmentation was variegated within the
lesion with a deeply pigmented, almost blue section, and the border
was irregular. On very close inspection, there was possibly a small
halo of depigmentation, perhaps slightly bluish.
Meanwhile, although the cold and wet
weather has come this year in the real weather, in our septuagenarian
lives, it seems like Indian summer. “Indian Summer.” Why it's
“Indian,” no one seems to know, not even the internet. But
everyone agrees on how sweet it is. As a teenager growing up in
Philadelphia, I thought that autumn was the best season, sunny and
not too hot and not with the Atlantic seaboard humidity of spring and
summer. I lived a 15 or 20 minute walk away from my high school, and
I remember thinking as I walked across the empty, treed lot at the
corner of Montgomery Avenue and North Wynnewood Avenue, that fall
would be my favorite season if it weren't for the fact that winter
impended, when the cold and winds make you pull your jacket closer
around your neck as you walked along the long curve of Montgomery
Avenue in the early dark on the way home. That's where the fall
weather is headed, but “Not yet!” proclaims Indian Summer. “You
got more, man!” And you enjoy it, you take off your jacket, you
eat outside, you throw a ball around and take a walk and say how warm
and clear it is, and tell each other how lucky you are. You know it
will recede, and you hope it stays longer, just a little longer
before you have to cover up. That was the way it was in Lower Merion
in the 1950's, and that's the way it is for us today in our 70's.
Indian Summer is to be relished.
Here in Berkeley it's now January and
the weather is cold and rainy, but thankfully not windy, but we are
covered up. We know we need the rain, so it's good and welcome and
we don't feel oppressed, at least not yet. We've had our health
challenges (see
http://buddshenkin.blogspot.com/2011/08/welcome-to-neurosurgeryland.html,
of course), but when I'm asked how I am, I answer: “Vertical!”
Verticality is as sweet as Indian Summer, and you never know when
your own personal clouds and wind will come.
Nowadays we know a lot more about our
health than we used to know, just as the weather-people on TV and
even our smartphones have satellites to consult. It wasn't Mark
Twain, but Charles Dudley Warner who said that “Everybody talks
about the weather but nobody does anything about it.” That's
probably still true of weather. A storm appears up in the Arctic and
we follow its course down the coast, and maybe it will weaken and
maybe it will continue on down, but we can't do much about it except
prepare for the effects. That's where the weather and health differ;
in health, we detect and then we act. Maybe there's something we can
do about it, sometimes not, but more and more, there's something.
Still, sometimes things just come out of the blue and there you are,
you're never completely sure what will come and when.
So when I was toweling off and my hand
strayed to an area I don't generally look at – you could say I'm
not vain so I don't look at myself, or you could say, given my excess
mass, that vanity is the motive force for not looking – and I took
the picture you see above to Make The Diagnosis, I wondered if an
arctic storm had just appeared. I know enough about skin lesion that
I wasn' just worried, but alarmed.
Fortunately, four years ago I had been
responsible enough to have switched dermatologists from a
contemporary to a younger doc. Jason Fung was a new derm in town and
had been, humblingly, a schoolmate of my kids at Head Royce School.
Good guy, active, extroverted, chatty, efficient, forward looking
with a scribe at his side. His survey of my skin had revealed
nothing troubling, but he now had the visual record on me. When I
called his office with “ a suspicious mole,” they offered me a
spot that very afternoon. I couldn't take it because I had to take
Ann to the doctor, but as it happened she had a routine appointment
at his office four days later so I was lucky enough to get a spot ten
minutes after hers. Ann thought my prompt appointment was evidence
of special treatment, but I said “suspicious mole” was code for
“get me in NOW.” Not only good patient care, but malpractice
avoidance dictates some actions in practice. Like, for
pediatricians, “he has excruciating testicular pain.” A ball can
die if it is twisted on its stalk, and you'd rather not have that,
and neither would your insurance carrier.
I told my friend Stu when I saw him at
the gym that I was going in to be checked for a suspicious mole and
he said, “It's probably nothing.” Which is what Ann had said,
although she had said to be sure to get it checked right away. I
hesitated to take solace from their opinions because I know wishful
when I hear it, and I had seen it close enough to know it was a
problem. But you never know. I can be alarmist.
So on Tuesday Ann went to her exam room
to have her stitches out and I went into my exam room and took off my
shirt, joined by young lady scribe asking the questions on her
script. Then Jason burst in asking about Allie and Nick and Brian
and Sara and even Peter and … whoa! “That looks funky!” said
Jason as he caught sight of the lesion. No more small talk. I was
surprised that it had been four years since I had been in for a
survey; hadn't felt that long at all. And I don't know when my last
physical was and if Jim had looked carefully at my body when I saw
him – there's enough to talk about without something you don't know
is there. So how long the lesion had been there was unknown, just
less than four years, and probably much more recent.
It's at least making a neoplastic
transition, he said. It might not have made it to melanoma yet, but
it's pending. In less than five minutes it was out and in a prep jar
on the way to pathology. I thought that the speed of extraction
reflected his efficiency, but neither of us wants that thing in my
body one more minute than necessary. It was Tuesday and he would
call me Friday on my cellphone. He gave me a roadmap – either
local excision in his office, or over to UC for tracing drainage to
the nodes and wider excision, no more talk, let's see. Let's not
prejudge, he said. But I heard his voice and I knew it was scary.
He said that he knows it wasn't there four years ago because he had
checked everything before he had come in to the exam room. It
wouldn't have been his fault. I do the same thing, look back to what
I could have done, etc. Was I culpable, is always my question of
myself. Guilt is always alive in the mental workings of the Budd.
But how long had it been there? We couldn't tell. Sometimes it
takes time, and sometimes they just explode. Path would tell us how
deep it went – less than 1 millimeter is the best – whether the
excision had gotten it all with a good margin, and how the cells
looked, aggressive or not so much. In any case, we'll be seeing each
other more in the coming days, said Jason. I like Jason, so I told
him I would enjoy seeing him.
I was curiously calm. Fatalistic, or
in denial? I know I'm really good at denial. Or, you could say I'm
really good at being in the moment. Nah … I deny. Ann didn't
understand that it was dangerous until later; I think she was in
denial, too, but maybe not. But anyway, I figured, say it's really
malignant. What would happen? Scan the whole body for metastases?
Where does melanoma go? Brain, for sure. Maybe liver, everything
goes to liver. Bone? I dunno; lung goes to bone. I would rather
not have brain metastases, with seizures and seizure meds, etc.
Rather not. Hard way to go.
But what I thought was, then I would
know how I would die, unless something else came up. I've never
known how I'll die – my heart's always been pretty good. My mother
died of breast cancer. Maybe cancer. Who knows how Indian Summer
ends and when? I've always figured, somehow, that I would go to my
80's; maybe that was wrong. I've said for some time now that I had
taken care of my major responsibilities. Kids up and out. I've got
enough money so that it will be a great help to them. Ann needs me.
We're in Indian Summer together, walking together. I thought about
my funeral. My book club would come, my poker game, my medical
friends, Bob and Adele, my sibs and their kids, Larry and Michael and
Marjorie. Stephen. Stu. David and Joanna. SOAPM would send
flowers. I had always wondered if any patients would want to come.
Maybe some, but how would they hear? Some of them love me, that's
what I need to know. As they say, it should be a good time, I'll be
sorry to miss it. What would Nick do, my estranged but still loved
son who works for the FBI?
My financial affairs – I'm pretty
simplified, which is good. If it looks touchy, I'll sell the condos
and make it simpler. Everyone should be OK. Need to make final
adjustments.
It will be a different life from now
on, if the melanoma is a threatening one, knowing more and having the
blanks filled out. Shorten the time line. I've been getting into
really good shape and made a new lower weight target. Keep that up?
What about the French? Continue with that? Do the paper on
healthcare I'm working on, or give it up? I had lunch with my friend
Richard, with whom I'm working on a project, and I found less
enthusiasm if I would have to devote the final days. Would hang back
on that. Maybe watch more movies, which I am already doing somewhat.
Somehow, less pressure. Not much reason to do anything except enjoy
yourself. While waiting for the curtain.
I knew it was a melanoma. Jason said
let's not prejudge, but I knew. “Funky lesion” doesn't make it
into the diagnosis books, but then, it's taken until this year for
Northern California (actually Berkeley-Oakland) “hella” as in
“that's hella good!” to make it into Merriam-Webster. And
medicine is even more conservative. I never want to be an
“interesting case,” and I'd rather not have a “funky lesion.”
I was already thinking about immunotherapy, hoping I wasn't going
that way. But prepared to do it, too. Making sure that others don't
get too upset. At least my parents have died, so they won't get
upset. No one's indispensable, and everyone thinks when someone gets
sick and dies, at least it wasn't me. Checking the ages in obits. A
diagnosis takes the curtain back a bit, knowing from what and closer
to knowing when.
What if it was in brain already and
very aggressive and I hear, “maybe six months.” What would
happen then? Well, it's coming sometime. Get the kids straight,make
sure no one gets too upset. Provide for Ann, that will be hardest.
Have to work with Sara.
We'll just have to see. I told Jason,
yes, we're planning to go to Maui for two weeks starting next Friday,
but forget that, we go all the time. The medicine comes first.
Maybe I'll have to ….
On Thursday morning Ann had just
finished with her yearly physical and we were walkingdown 30th
Street past Summit to the car when the phone rang. It wasn't Friday
yet, but I saw on the phone that it was Jason. He hemmed and hawed
for a minute, and I thought, Oh, shit. But then he got to the point.
Yes, melanoma. OK, Jason, not great, but that's not the crucial
info. Why was he hesitant. Waiting. But … good news! He should
have started out saying “Good news,” but I guess he was still
hung up on the “melanoma” part. But, only 0.9 mm deep – hoping
to be less than 1 mm, and there it is! Just ducked in under the
limit! Excision margins – clear! State of cells – not
aggressive yet! So, if you had to have a melanoma, this is the one
to have, he said. You bet! He said that he would schedule me for a
wider excision by the lady who does them at his office. OK by me!
In fact, how about tomorrow, Friday? You bet! 1 PM in Lafayette
office? Sure! Get this done.
No need to change any plans – go to
Maui, go on cruise, Indian Summer continues! Yessir! Worry
dispelled. Looked it up on internet finally, and stage 1a, 97%
chance of non-recurrence. I'll take that with gratitude.
So, what people say sometimes after
they have been seriously ill and they have refocused on their lives
is, I won't say I'm grateful for this, but it did me a lot of good.
I'm wondering now, I can't say I'm grateful for this scare, but it
was only a scare, but scary enough so that I started traveling in the
shady land instead of just imagining it, and I know I'll be there
someday, so can I say hey, maybe this was the best of the worlds,
that I can change my life for the better and still didn't have to be
sick. Can I do that? Or maybe I can just realize that my Indian
Summer is going just fine. We'll see what I think.
Carpe diem, man, carpe diem. Do as
much good as I can and enjoy every single day, even the cold, rainy
ones. I just have to wonder, will this rain ever stop? They say
we're mostly out of the drought. Hope so.
BTW -- here's what it looked like ex post facto. A lot better out than in....
Budd Shenkin
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